ALS sucks big time. The dad of a kid I was support teacher for got it, and seeing the disease progress was rough, can only imagine what it's like for family. But the good thing is the mind is still there, so being with her is a very good thing, and most certainly making her life a lot better. Hope you and your mom manages to have a good time despite the disease.
Edit: For myself, I'm on my last paycheck this month, and then I will be unofficially unemployed. I got enough saved up that I shouldn't have a problem financially for quite some time, but I also hope to be able to loan money for a house soon, a fairly perfect house for what I need (i have about 2/5 of the value saved up myself). Felt fine not having a job and being fired due to illness, but I have a feeling I will get rejected due to no permanent work and it will fucking suck. Dont want to ask parents for help. Hoping that never owing anyone money and always paying everything on time will work to my advantage though.
Started doing long walks every day, and working out with dumbells every second day. It isn't much, but it really has made me feel better physically, and that helps feeling better mentally in the end. No real anxiety over surgery, no panic every time the phone rings thinking it's the hospital, and no stress due to not working.