Author Topic: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)  (Read 2537 times)

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SantaC

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I am going to Germany(sweden dont believe in that disease) for lyme treatment in October. It's a city outside Stuttgart called Pforzheim. The clinique is closed on weekends though, so I am wondering what is there to do? I have rented an apartment in the city.
« Last Edit: September 19, 2017, 07:33:29 PM by SantaC »

Valkyrie

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Re: Any Germans here?
« Reply #1 on: September 19, 2017, 06:35:18 PM »
Not me, just wanted to say good luck on your treatment!

Är du svensk?

SantaC

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Re: Any Germans here?
« Reply #2 on: September 19, 2017, 06:42:08 PM »
Not me, just wanted to say good luck on your treatment!

Är du svensk?

Yes i am swedish. Thank you.

För 2 år sedan vart ja biten av en fästing. Vart dålig sedan dess och vården här är ett skämt.

Valkyrie

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Re: Any Germans here?
« Reply #3 on: September 19, 2017, 07:01:10 PM »
Damn. My dad also has Lyme disease men han er gammel, og det var ikke oppdaget før det hadde gått veldig lenge. Har du problemer med hendene og knærne dine? You're much younger though so I think you'll be way better off than he is. His treatment was really delayed.

SantaC

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Re: Any Germans here?
« Reply #4 on: September 19, 2017, 07:06:25 PM »
Edit

SantaC

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Re: Any Germans here?
« Reply #5 on: September 19, 2017, 07:07:20 PM »
Damn. My dad also has Lyme disease men han er gammel, og det var ikke oppdaget før det hadde gått veldig lenge. Har du problemer med hendene og knærne dine? You're much younger though so I think you'll be way better off than he is. His treatment was really delayed.

Problem with the brain. Cant think clearly :(

http://dr-w-klemann.de

Is europes best lyme clinic. Will cost 10k euro though.

chronovore

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Re: Any Germans here?
« Reply #6 on: September 19, 2017, 07:14:53 PM »
 Shit, SantaC, I am sorry to hear you are suffering under Lyme disease. For some reason I thought it was a primarily American disease, since there is so much controversy about it in America. I wish you the best of luck in your treatment.

SantaC

  • Senior Member
Re: Any Germans here?
« Reply #7 on: September 19, 2017, 07:20:11 PM »
Shit, SantaC, I am sorry to hear you are suffering under Lyme disease. For some reason I thought it was a primarily American disease, since there is so much controversy about it in America. I wish you the best of luck in your treatment.

It is the most horrible disease you can ever imagine. I am constantly fatigued, my body feels unstable, my fingers are stiff. But worst of all, i got brain fog which means i am cognitive dysfuctive. I have been like this for 2 years and swddish medical care says i am imagine things despite my problems started with a tick bite. Some days i dont want to get out of bed, but i have too. I have a 6 year old daughter to take care of and life isnt easy.

It is very controversial here as well. The test methods are very unreliable but they cant admit it.
« Last Edit: September 19, 2017, 07:30:42 PM by SantaC »

Rufus

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I'm surprises there's such a disparity in diagnoses/treatment options.

SantaC

  • Senior Member
I'm surprises there's such a disparity in diagnoses/treatment options.

You be surprised how many swedes that travel to germany for treatment.

Here is the thing  swimming in my blood. Showed the video for a doctor here and he dont care. Idiots.




thisismyusername

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Re: Any Germans here?
« Reply #10 on: September 19, 2017, 08:09:11 PM »
Shit, SantaC, I am sorry to hear you are suffering under Lyme disease. For some reason I thought it was a primarily American disease, since there is so much controversy about it in America. I wish you the best of luck in your treatment.

https://en.wikipedia.org/wiki/Lyme_disease#/media/File:Geographical_distribution_of_reported_Lyme_Disease_cases.png

chronovore

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Re: Any Germans here?
« Reply #11 on: September 19, 2017, 08:24:19 PM »
Shit, SantaC, I am sorry to hear you are suffering under Lyme disease. For some reason I thought it was a primarily American disease, since there is so much controversy about it in America. I wish you the best of luck in your treatment.

It is the most horrible disease you can ever imagine. I am constantly fatigued, my body feels unstable, my fingers are stiff. But worst of all, i got brain fog which means i am cognitive dysfuctive. I have been like this for 2 years and swddish medical care says i am imagine things despite my problems started with a tick bite. Some days i dont want to get out of bed, but i have too. I have a 6 year old daughter to take care of and life isnt easy.

It is very controversial here as well. The test methods are very unreliable but they cant admit it.
I'm surprises there's such a disparity in diagnoses/treatment options.

https://en.wikipedia.org/wiki/Lyme_disease#Controversy

A friend of mine has "chronic Lyme," and is constantly battling its symptoms. It's absolutely horrible, doubly so because the medical establishment is sharply divided on whether or not "chronic" symptoms are real or imagined. We're in the denial stage of its existence.

SantaC

  • Senior Member
Re: Any Germans here?
« Reply #12 on: September 19, 2017, 08:40:10 PM »
Shit, SantaC, I am sorry to hear you are suffering under Lyme disease. For some reason I thought it was a primarily American disease, since there is so much controversy about it in America. I wish you the best of luck in your treatment.

It is the most horrible disease you can ever imagine. I am constantly fatigued, my body feels unstable, my fingers are stiff. But worst of all, i got brain fog which means i am cognitive dysfuctive. I have been like this for 2 years and swddish medical care says i am imagine things despite my problems started with a tick bite. Some days i dont want to get out of bed, but i have too. I have a 6 year old daughter to take care of and life isnt easy.

It is very controversial here as well. The test methods are very unreliable but they cant admit it.
I'm surprises there's such a disparity in diagnoses/treatment options.

https://en.wikipedia.org/wiki/Lyme_disease#Controversy

A friend of mine has "chronic Lyme," and is constantly battling its symptoms. It's absolutely horrible, doubly so because the medical establishment is sharply divided on whether or not "chronic" symptoms are real or imagined. We're in the denial stage of its existence.

Usually you get co infected with other diseases as well. Bartonella, anaplasma, babeosis etc. One tick bite can give you 20 different diseases.

I feel sorry for your friend. No one is imagening this diaease.

Huff

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #13 on: September 19, 2017, 08:55:56 PM »
It's not that the US doesn't accept chronic lymes disease as a thing, it's that there's never been any treatment in the lit that has been better than placebo. In these cases, there's a lot of personal options and preferences between experts and clinicians about treatment strategies - conservative vs otherwise.
dur

SantaC

  • Senior Member
Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #14 on: September 19, 2017, 08:57:20 PM »
It's not that the US doesn't accept chronic lymes disease as a thing, it's that there's never been any treatment in the lit that has been better than placebo. In these cases, there's a lot of personal options and preferences between experts and clinicians about treatment strategies - conservative vs otherwise.

Antibiotics iv absolutely helps. Also read this article.

http://truthbetoldx81.blogspot.se/2017/06/human-torture-chamber.html?m=1

Huff

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #15 on: September 19, 2017, 09:19:46 PM »
I mean I'm not going to get into a medical literature debate with anyone here.

Hope things work out for you
dur

Bebpo

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #16 on: September 19, 2017, 09:57:39 PM »
Sorry to hear SantaC, hope the treatment goes well for you. Germany is pretty rad.

chronovore

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #17 on: September 19, 2017, 11:38:11 PM »
It's not that the US doesn't accept chronic lymes disease as a thing, it's that there's never been any treatment in the lit that has been better than placebo. In these cases, there's a lot of personal options and preferences between experts and clinicians about treatment strategies - conservative vs otherwise.

Without getting into a debate, my friend's experience has been that "chronic Lyme" is flat-out denied as an actual disease by many doctors.

agrajag

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #18 on: September 19, 2017, 11:49:35 PM »
Hope the treatment goes well!

Cerveza mas fina

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #19 on: September 20, 2017, 12:19:19 AM »
Good luck, my aunt had this but shes fine now :)

SantaC

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #20 on: September 20, 2017, 01:40:54 AM »
Thanks a lot guys!

G The Resurrected

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #21 on: September 20, 2017, 01:52:23 AM »
Man this is heartbreaking to hear man. I hope your treatment is successful and I'll keep you and your family in my prayers. I was bit by fleas and have an autoimmune disease because of one of their bites. It's not the same as Lyme disease, but I can tell you it was hard to diagnose it took years. If there's anything we can do to cheer you up or help you out don't hesitate to ask.

 

Raist

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #22 on: September 20, 2017, 03:29:59 AM »
Stuttgart isn't exactly a thrilling city. Unless you like cars, I suppose. There's the Mercedes museum or whatever it's called.

Good luck for your treatment.

Momo

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #23 on: September 20, 2017, 03:33:12 AM »
Shit reading about it now. wtf is this disease, good luck buddy.

chronovore

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Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #24 on: September 20, 2017, 05:53:54 AM »
Shit reading about it now. wtf is this disease, good luck buddy.

 It's particularly insidious, because the initial telltale is a target shaped inflammation at the point of entry. But once the inflammation fades, many people assume the infection has gone away when it means they are still infected, deeply.

Lyme is theorized to leave the bloodstream and reside in tissue, this sometimes causes false negatives when testing recurrence, further undercutting perceived validity of chronic Lyme.

SantaC

  • Senior Member
Re: Any Germans here? Going for chronic lyme treatment (any lyme warriors here?)
« Reply #25 on: September 20, 2017, 08:38:24 AM »
Shit reading about it now. wtf is this disease, good luck buddy.

 It's particularly insidious, because the initial telltale is a target shaped inflammation at the point of entry. But once the inflammation fades, many people assume the infection has gone away when it means they are still infected, deeply.

Lyme is theorized to leave the bloodstream and reside in tissue, this sometimes causes false negatives when testing recurrence, further undercutting perceived validity of chronic Lyme.

The disease is so advanced that only a few handful doctors in the world can treat it.